#chronic illess

[brandileigh2003]

Spoonie Life... currently can't handle any kind of heat so I'm sitting over my air conditioner vent getting cool.. bc... you know feeling like I'm about to pass out... But whenever I finally do, it'll be a struggle to get up off the ground... right now regret a little bit because my back is going to hurt when I do get off the ground.

Sigh.

So tired of this.

[genshiluv]

☙} my name is angel ♡

☙} im 18, birthday august 1st ♡

☙} female, she/her/they/them

☙} genshin design but chronic illness blog woo

☙} kokomi and tartaglia are my favorites :)

☙} nonjudgemental and drama free, im inclusive and peaceful so please kindly dni if youre here to start drama or be mean 💗

☙} will vent frequently abt my chronic health issues :)

[sparkles-and-trash]

Sooo I ended up making the cosplay wishlist into a more general wishlist

It feels kinda weird, but since everything is expensive rn and I’m poor af on my little disability pay and not being able to work half as much as I want to, I kinda just figured…

Why not?

Anyways, just because I add the link to stuff it does not mean I ever expect anything, ever! 💞

[rainbow-fairylandsystem]

oh my god. oh my god, what if i’m not stupid? what if i just have brain fog?

i’ve spent years thinking about how much slower i’ve gotten since i was a teenager, i used to be so quick and sharp. i was never good in school, but i was always good at stuff like literary analysis and debating and languages. at the very least, i could devour chapter books in a matter of hours

now, i can’t even get through a few pages of a book without just giving up. i just thought, wow, am i just getting stupid now that i’m older? my brain can never keep up with conversations and it takes me ages to come up with an answer for anything.

what if this isn’t my fault?

[eirlys-jane]

Day fourteen - What would your MC want to change about themselves?

Maeve is fine with who she is overall, but she’d change her health. Having chronic health issues can be a nightmare at the best of times, and in the situation that the story is set in, they’re even more of an inconvenience and cause her a lot of pain and hassle. She really appreciates everything that they’ve taught her and how much she’s grown and adapted thanks to her illnesses, and the fact that she’s able to perceive the world from the view of both a disabled and abled person, but she’d rather trade her experience for a functioning body that doesn’t try to kill her.

[spoonless-sunflower]

One of the most confusing parts about POTS, at least for me bc I still have no real guidance and I'm trying to figure it all out.. is the heart palpitations.

Sometimes I'm anxious and my heartbeats are wild and painful. And sometimes I'm anxious and my heart is regular fast-beating. Is some of that hyper-beating from a POTS flare? Is it an anxiety attack?

This week I'm flaring in the opposite direction. Even when I'm anxious my heartbeats feel way too slow. I'm light-headed and can't move. Sodium and water aren't helping. Why??

[absolutebearings]

i’m so frustrated like every time i try and look up some way for me to get some exercise the BEST advice i found was working out in a pool, because its not as high impact. the rest of the advice was stuff:

lose weight! you’re sick because your fat!

are you sure you’re not making this up for painkillers?

I’ve never even heard of this problem

you know, everyone has pain right? just take some ibuprofen about it

the Right Vitamins will literally cure all of the problems you’ve ever experienced 

here read 200k words by very obviously paid actors extolling your garbage with a dead ‘please pay me’ look in their eyes

hey ... it says you did some research before coming here so you could ask me salient questions about your care. that is Unacceptable. only i’m allowed to be informed.

get your head straight! anxiety! you’re doing this to yourself you big moron!

have we mentioned that your poor personal choices are the reason you’re a fat tub or lard and we’ve decided that means you deserve your suffering

now give us your money and scram

[brandileigh2003]

[morethanthediagnosis]

IC: it is not your responsibility to educate others.

google is free. let people live their lives.

[chronic-confessions]

Confession #3,519

I feel terrible for my partner. Every day he plans his day around mine and wether it is a “not so bad pain day” or a “bad pain day”. I feel like I’m weighing him down, especially when I can’t even stand up to get my pain killers.

[cvidzebralife]

[purpleyin]

I had good news and bad news this morning, both of which woke me up at 8.30am which is far far too early for me.

Bad news is my thyroid is more frakked now than before, but the good news is this explains why I’ve been so freaking tired the last 4ish months - luckily it’s not the lupus getting worse - and now it’s known I get more meds, so I might feel more like myself in a few weeks time.

[mightyoctopus]

If you know someone who has been disabled or ill since birth, chances are that they know way more about their condition than you.

If you know someone who has been disabled or ill since birth, chances are also that you know at least one repercussion of their illness they would never think about.

[invisibledisability]

Post-it notes in my head

Graphite

© Robin Berernholz, 2017

[brandileigh2003]

I'm so tired of being in pain and my mental health sucks right now.

Like, I can't do the things I want to do.

I want to go see citizen soldier Friday but I don't think I can stand that long (95% I can't) but they say ada seating is first come first serve. And that people line up early. Which is also an issue. So. I'm stuck like--Can I do this? Is it worth it? And I can't stop thinking and stressing about it and feeling frozen with making a decision.

I just want to be able to do something like this without worrying about not being able to have accommodation.

And I've been emailing with the place and they know there is someone concerned and thinking about not coming bc of it and they haven't offered to do anything to ensure that I will be able to. And I know there is only so much that can be done. But also with the setup of what I can see online. I think they could say- come anyways and we'll ensure you have somewhere to sit when you need it. But they haven't.

I'm sorry for the rant and rambling.

And what I'm dealing with mentally I can't talk about but I can talk about this one challenge so I thought I might ramble and see if it helps.

[misssugar124]

It’s making you stronger!